Sensory Processing Disorder Seeker is not easy to understand and every child has a different story. Learn more about my sensory seeker son and sensory processing disorder.
Sensory Processing Disorder Seeker What?
SPD (sensory processing disorder) is not a horrible disease that requires a long hug and awkward “Everything is going to be ok”. Many have no idea that SPD even exist and some just don’t want to know. Some will try to understand. Some might even think that it is a made up word for making the diagnosis. However, if you are a mom of a little boy or girl who has more questions than answers. If you don’t know how to put your child to sleep without massive meltdowns. If you just feel that something is not right. You know it is as real as it gets.
First Sensory Year
First year is the most difficult, but in my first year I have learned so much. Today I look back at the everyday struggle I went through (and not like every day now is a walk in a park) and I only wish I knew then what I do now about my sensory processing disorder seeker. Both my son and I got the right tools and have found a common ground that allows us to communicate in the same language. What helped? I have read a few books, did some research and got a lot of help from my son’s school. If you happen to be going through the evaluation and diagnosis now and feel like you are drowning because you don’t know how to deal with your baby, just know we all have been there and you are moving in the right direction.
If you have shared what you are going through with friends and relatives, they will probably want answers and that is what I always have struggled with – give a simple digestible explanation of what SPD is. The best one I got from a friend was: “My son’s brain is wired a bit differently and he doesn’t react the way he should be reacting in different situations and that is confusing for everyone including him”. Today being a happy 4-year-old, he doesn’t always understand the signals he gets from his brain and it goes something like this: I need something. I think I am hungry or thirsty or I want to take a bath or I want to draw, when in a reality he is tired and wants to go to sleep. This is a typical behavior for a sensory processing disorder seeker.
Stop Listening to Others
Here is what you will hear from people who are close to you as well as random strangers that should keep their opinions to themselves:
- There is nothing wrong with your child.
- All boys do that.
- It is because he is growing up in the by-lingual family.
- He is spoiled.
- He just needs discipline.
- Your uncle did exactly the same things.
DO yourself a favor – do not argue. Do not try to explain. Just ignore it, because they will not understand whatever you say – they are not listening.
Some people will not understand at all. As bad as it sounds, but some people will just won’t get it. Many older people who have a rational explanation for anything based on their wise life experience possibly are just not capable to understand it. They might have a better understanding of a spiritual fortune-teller solving crimes than they do of SPD. I have also met some fathers who just doesn’t get it and I want to believe that they will try to connect with their sensory child at some point when both of them are ready. You as a mother know: screaming will cause more screaming and will not get them any closer to each other.
Being a Sensory Parent
I will tell you one thing – in the process, you will learn to spot other kids with sensory processing disorder seeker issues. On the playground or at the store, you will spot another sensory kid very quickly. I call it my superpower, but for obvious reason I won’t tell the happy, “normal” mom, her kid has an SPD – that would just be awkward.
Sensory Processing Disorder Seeker is not easy to understand and every child has a different story. Learn more about my sensory seeker son and sensory processing disorder.
Liz says
Interesting post. I think I have heard of SPD before but haven’t read much about it.
Katy says
Lena – Love that you are sharing more about this on your blog. It’s such an eye opener for those who have never heard of SPD and a great reminder that we shouldn’t judge anyone we come in contact with because we never know the full story. – Katy
katherine says
I’ve heard of this and thought my daughter had it when she was younger
Jenn @comebackmomma says
My daughter has some learning disabilities and anxiety. It is so true that many people, especially her peers don’t get it. Sharing your experiences helps others to better understand.
Jenna Wood says
Too funny at the end, SPD-dar 🙂 I think it is great you are in tune enough to have picked up on the extra handling and patience your son needs with SPD. There are so many nuances of the human spirit, and it can be hard to learn how to approach and interact with every one.
Stevie says
I haven’t ever heard of that before- probably because I don’t have kids or friends with kids really… but I think it’s ridiculous how people give their opinions on things they know nothing about. If you don’t know about something, don’t say anything at all- just try and learn about it the best you could. It’s great you’re writing about this – to give more people more information 🙂
melissa says
I have not heard of this before! Thanks so much for sharing and I know someone who can greatly benefit from this!
Nicole Brady says
Maybe I’m just a forever optimist but I think a lot of the comments and “excuses” you’re hearing from others is because they want to make you feel better. I like to believe the best in people but know when someone like you is forever faced with negative comments, it’s hard. If I ever say anything inadvetantly to a mom – thinking I’m helping or consoling – but I’m really hitting a nerve… I hope that they would say something to me to help me learn. Thanks for the post. It helps!
valmg @ Mom Knows It All says
I have heard of SPD before and know some parents that deal with it. Your list of unwarranted advice and input applies to many children with special needs, I often find myself wishing people would just keep their mouth shut if they don’t have anything constructive to say. But, most people feel the need to say something and so they blunder on.
Way 2 Good Life says
Totally. Some might wish well, but they have no idea how many times we’ve heard this before
SHELLEY R ZUREK says
I think you nailed one of the hardest issue. Dealing with the world and it’s judgement. Sounds like you are well grounded. Be brave.
ourfamilyworld says
I am so sorry about this! Judgement is hard and people see only the appearance! Great tips
Chrysa says
I’m not familiar with SPD unless it may also go by other names, but it’s interesting to hear about it from a parent’s point of view.